New findings

http://www.webmd.com/fibromyalgia/news/20110513/fibromyalgia-pain-takes-toll-on-everyday-life?src=RSS_PUBLIC. Really important findings by polling fibromites. Everyone should take a look. Kinda hurts my last post but oh well :p

Insensitivity Innoculation

I may very well hurt the next person who comments on how being chronically ill is going to affect my relationships. I know I've ranted about this before but people continue to amaze me at how insensitive they can be. I understand that people who are well don't see another person who is well willing to deal with me being sick. I get that.... really...and I also get why people commit assault... very well actually.

I've had my grandmother mention it in passing which only slightly aggravated me. And of course I've had the numerous coworkers who go "Oh... you can't do this.. or that... how the hell do you expect to get married" .... well gee merry martha can't we go on roller coaster of negativity again? It was a lot of fun!

Probably the worst one I've had was fairly recent. My father. The man who is basically me with male genitalia and as many ex-wives as some people have cars in their driveway. He actually thought he was okay to go and lecture me on marriage. Good try .... I believe his direct line of thinking was like "You know I love you right Serena? I really do. But I honestly can't picture anyone willing to put up with you for the rest of your life".... email format.... no joke. Hey dad? You're as jackass.... but you know I love you right? idiot....  He knows so much of me and how I tick and yet didn't see this as being hurtful. I can't even imagine him being ignorant he was just pretending he didn't know it would cut like a knife (insert old skating song....)

For any of you who are reading this in order to learn from a fibromite about all you can do to help your loved one with a chronic illness...... NEVER NEVER NEVER SAY THIS! Ever! In ANY form! It is not helpful and with probably result in your loved one throwing something scalding or very heavy at your face. Because if you are friends with this person they will then question how hard it is for you for to be their friend... and you'll come up short in comparison deary, never fear. If you are family to this person you are forever going to be blacklisted in personal chats (well... this might actually be helpful to some of you) and they will never speak to you again about things that bother them. And if you are anyone else who was just trying to show that you really understand how badly their life is going to suck, you are indeed a moron and an insensitive cad.


On a brighter note, I've spoken with my grandmother about me probably never marrying and she says if I have kids on my own through a sperm bank or adoption she won't write me out of her will or refuse to speak to me again, she'll just pray for my soul and the soul of any children I have.... definitely more positive than I was thinking.....

And if you are reading this as someone who has a chronic illness please listen very carefully. Anyone who ever says this to you "Oh wow you'll probably never find a husband, have kids etc etc etc" is a complete idiot and knows nothing about your illness. At first I thought this was true but it really isn't at all. I've come to know many people who have fibromyalgia, arthritis, lupus, etc who had a family and then got sick and retained that family or else had the illness and then attained a family. It's definitely hard work and not for the faint of heart but it CAN happen. Just keep searching and if you happen to find a spare guy throw him my way will ya? I could use all the help in that department that I can find. Last date I had constantly asked me if I had my cane just in case, when we'd go out, or ask me if i'd taken my meds like I was supposed to. I almost and I do same ALMOST remembered the guy who said I had too much "baggage" fondly.... it was sad. Guy was nice (not the baggage guy) but there can almost me too much awareness and acceptance of an illness. Good luck fibromites!!!

Sad Ponderings

A friend of mine was talking to me about her relationship problems today at work. Her boyfriend is giving her all these issues etc etc doesn't care about her feelings etc etc and then she said something that stopped me dead in my tracks "It's got to be hard for you considering your past dealings with love and with you being sick and everything to actually hope about a good relationship" Wow.... thank you so much for kicking me in the teeth... that was great.


Thing is... She's right. I can name on one hand with room to spare the amount of "good" relationships that I've seen. My Uncle Joey and his wonderful wife, My youth pastor and his wife, .... and... um.... okay yeah so a LOT of room! And it's not like I don't know amazing men and women. I do. But it still doesn't work out for them. How am I supposed to believe it will work out for me considering all the issues I'm still dealing with.

On a happier note my guinea pig "Megatron" is doing well and "popcorning" around his cage like crazy :p DEFINITELY cool :)

Clumsy and Clueless

The brain fog has been TERRIBLE lately! I can think normally and be absolutely fine and then everything is gone... just... what was I saying again? :p And working at a coffee shop I would love to have some amount of control over my body.... I've scalded myself at least seven times this week. Only good thing about fibromyalgia is sometimes not being able to feel pain or not as much as I should. So when I dumped a coffee all over myself earlier I just yelped and then said "awwwwww shit!" like a million times instead of screaming like a ... well like a girl. Does anyone else have more issues with brain fog and and being clumsy when they push themselves during a flare up? I know someone has to read this blog I keep getting the notifications :p

http://www.back-fibromyalgia-pain.com/fibromyalgia-relief-from-depression/

Self Help

Practicing self help techniques for Fibromyalgia can provide Relief from Depression. You can regain control of your life again, you can learn how to effectively  self-manage fibromyalgia for  relief from depression.  Fibromyalgia patients suffering from depression feel hopeless, yet there are a number of  self help techniques that are extremely helpful and supportive.

Fibromyalgia Relief from Depression, Self Help Techniques

1. Follow a diet low in refined sugars and carbohydrates, and high in fresh vegetables and protein.  Sugars, starches, and caffeine make the patient feel worse when the rebound crash sets in.

2. Exercise daily.  Exercise releases endorphins that make the patient feel good. It is known to boost moods, which improves the  symptoms, an effective fibromyalgia relief from depression.

3. Supplement the diet with fish oil, flaxseed oil, and other food sources high in essential fatty acids.

4. Reduce or eliminate the use of alcohol and drugs.  Alcohol and drugs cause a deeper depression.

5. Get at least 15 minutes of sunshine daily.

6. Get at least 8 hours of sleep a night and go to sleep at a consistent hour.  Ideally sleep shortly after sunset, rising at sunrise.
7. Practice coping techniques like breathing practices, spiritual pursuits, laughing and forgiving.  See Breathing, Yoga, Meditation and Tai Chi for relief from fibromyalgia depression.

8. Don’t hide, go out, talk, seek emotional support from professionals, friends and family.

9. Join a depression support group, if this is difficult there are many online communities and forums available. Contact http://www.depression-forums.com to find support and relief from fibromyalgia depression.

10. Eliminate or reduce unnecessary tasks from the daily schedule.

11. Avoid making long-term commitments or important decisions.

12. Focus on the positive aspects of life.  Studies have shown that negative thinkers are more depressed, stay in a state of depression longer, and are more likely to develop depression again.

13. Do not feel guilty, only assume responsibility for your actions.

14. Practice forgiveness – of yourself and others.

15. Get out of bed in the morning and do something, do not linger and think. Get out, go for a walk, get some fresh air and sunshine.  Meet with a friend. Break the normal routine, it works wonders for depression.  Studies consistently show that activity decreases fibromyalgia depression.

16. Volunteer or do something for somebody else, something that is fulfilling. This gives purpose to life and provides incredible relief from fibromyalgia depression.

Take responsibility for your recovery, only YOU can have the power to recover.  It is your decision to follow the self help techniques for the relief from fibromyalgia depression.  See a physician if necessary, make the necessary fearless lifestyle changes, exercise and move on.

You can do it!  Give your self a boost with the Fibromyalgia Depression help products which help  stabilize the mind moods.

Sunny Shit

Seriously people, what's with the need for everyone around you to be sunny and spouting off about rainbows and butterflies. SHUT UP! No, I don't look happy. Yes, I'm probably raining on your parade but saying something other than "oh i'm good" in response to your "hey how you doing?". No, I don't look well at all, probably look like I haven't slept well... haven't in years, your point being? Yes, I tend to be rather testy at times. I'm in chronic pain. Keep hassling me, telling me that you need me to be sunny and cheery all the time? And you're going to be in some chronic pain yourself, at least until the casts can come off.

Hating Hurting

I try to work though it and do what's best for my body, but it kills me. Getting up every morning when I feel terrible. Driving to work even though it hurts. Smiling and being nice to everyone even though my brain feels foggy and the pain makes me want to start screaming. It's killing me. The thought of another 50 years of this? It's terrifying. I'm not looking forward to the future... and for a girl who had such big dreams... it hurts more than the fibromyalgia